National Brain Tumor Society
National Brain Tumor Society
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National Bestfriends Day - Leo and Frank Share Their Story
🫶 People living with brain tumors look to their community for support.
In recognition of National Best Friends Day, we celebrate the friends who help patients and caregivers every day, whether through supportive phone calls, transportation to appointments, delicious meals, or fun outings.
Leo and Frank talk about the importance of their friendship after Leo was diagnosed with #glioblastoma.
#braintumor #braintumors #braintumorawareness #NationalBestFriendsDay
Переглядів: 14

Відео

National Nurses Week - Monica F. Shares Her Experience as a Nurse & Caregiver
Переглядів 135Місяць тому
In honor of #NationalNursesWeek, we recognize the contributions and sacrifices made by nurses to support the brain tumor community. As a nurse, Monica F. treats adult and pediatric patients in the same-day surgery unit following their craniotomies. She also has personal experience with brain tumors, as her father passed away from #glioblastoma and her nephew lives with a #brainstemglioma. Join ...
Join NBTS on May 11 for the Georgia Brain Tumor Walk & Race! Register Today: BrainTumor.org/Georgia
Переглядів 92Місяць тому
Join us on Saturday, May 11, at The Battery Atlanta for the Georgia Brain Tumor Walk & Race. The Georgia #braintumor community will gather for this family-friendly walk/run to celebrate and honor those who have been affected by #braintumors. Your participation will help the National Brain Tumor Society accelerate breakthroughs for better treatments and improved quality of life. Register today a...
Race for Hope DC - Message from David Arons - Register Today!
Переглядів 292 місяці тому
Find community at the 27th annual Race for Hope DC on Sunday, May 5! Today is your last chance to register to receive a 2024 Race for Hope DC shirt! 👕 Come out to Freedom Plaza for a morning filled with connection, hope, and purpose as we raise critical funds to drive discoveries forward. Your community is here. Let’s discover a cure, together. Register today: braintumor.org/event/race-for-hope...
Race for Hope DC - Message from David Cook - Register Today!
Переглядів 642 місяці тому
Join our honorary race chair, David Cook, and thousands of fellow brain tumor community members at Race for Hope DC on Sunday, May 5. Tomorrow is the last chance to register to receive a 2024 Race for Hope shirt! 👕 Be inspired as we celebrate survivors at the start of the 5K during our Survivor Tribute and honor and remember those impacted by brain tumors at the Wall of Hope and during our clos...
NBTS Brain Tumor Advocates Share Why They Head to the Hill: Register Today
Переглядів 932 місяці тому
Registration closes today for this year’s Head to the Hill on May 6-7! 🗓️ Join NBTS and advocates like Lori, Theo, Savannah, and Sasmit on Capitol Hill to advocate on behalf of the #braintumor community. Register today: BrainTumor.org/HeadtotheHill 🔗 #Head2Hill #BTAM #BrainTumorAwarenessMonth #braintumorawareness #braintumor #braintumors
Savannah Mason Shares Why She Attends Head to the Hill with NBTS: Register Today, May 6-7
Переглядів 1942 місяці тому
Registration closes April 1 for this year’s Head to the Hill 🗓️ On May 6-7, join NBTS and fellow advocates like Savannah on Capitol Hill in Washington, D.C., as we raise our collective voice to ask for more #braintumor research funding and to urge policymakers to prioritize patient-first policies impacting the brain tumor community. Register today at: BrainTumor.org/HeadtotheHill 🔗 #Head2Hill #...
Neuro-oncologist Sasmit Sarangi Shares Why He Attends Head to the Hill with NBTS
Переглядів 733 місяці тому
On May 6-7, join NBTS and fellow advocates like Sasmit on Capitol Hill to share your story and urge policymakers to address the critical issues affecting the #braintumor community. Connect with advocates from across the country as we raise our collective voice to make positive change. Register today: BrainTumor.org/HeadtotheHill #Head2Hill #braintumorawareness #braintumorawarenessmonth #braintu...
Join NBTS for Race for Hope DC and Head to the Hill on May 5-7 during Brain Tumor Awareness Month.
Переглядів 1503 місяці тому
Three days, one mission! This May 5-7, join us in Washington, D.C. to raise funds and awareness for the #braintumor community. Walk or run in Race for Hope DC; connect with patients and caregivers from across the country; and meet with your representatives in Congress to advocate for patient-first policies and urgently needed funding for brain tumor research. Register today: braintumor.org/even...
Theo Stephen Shares Why He Attends Head to the Hill with NBTS
Переглядів 3393 місяці тому
Join brain tumor advocates like Theo from across the country in Washington, D.C., on May 6-7 to raise our collective voice at this year’s Head to the Hill. With your help, we can urge policymakers to address the urgent, unmet needs of the #braintumor community. By sharing your story with your elected officials, you humanize the issues for them, propelling action. Register today: BrainTumor.org/...
Lori Stephen Shares Why She Attends Head to the Hill with NBTS
Переглядів 1153 місяці тому
Join advocates such as Lori for this year’s Head to the Hill at the Capitol on May 6-7. Sign up by the April 1 deadline to join us in person this year and raise your voice in support of the brain tumor community. Register today: braintumor.org/advocacy/head-to-the-hill/ #Head2Hill #braintumors #braintumor #braintumoradvocacy
NBTS Board Chair Edjah Nduom Shares Why Patients with a Brain Tumor Should Seek a Second Opinion
Переглядів 743 місяці тому
The gravity of a #braintumor diagnosis and the complexity of treatment decisions can leave you feeling lost and uncertain. In such challenging circumstances, making well-informed decisions becomes paramount. In most cases, there is time to seek a second opinion with another neurosurgeon before undergoing surgery. Learn about the value of obtaining a second opinion when it’s safe to do so and op...
Head to the Hill 2024: Join NBTS at the Capitol on May 6-7, 2024
Переглядів 4164 місяці тому
Head to the Hill 2024 is here! Join the National Brain Tumor Society and your fellow volunteer advocates in Washington, D.C., on May 6-7, 2024, as we return in person to Capitol Hill. Share your story and urge policymakers to address the critical issues affecting the #braintumor community. Register today: secure.braintumor.org/site/TRR?pg=utype&fr_id=3903 No prior experience is needed, and NBTS...
Race for Hope DC 2024
Переглядів 3274 місяці тому
Race for Hope DC registration is OPEN! On May 5, join the #braintumor community at Freedom Plaza to raise awareness and funds for breakthroughs ahead. Register yourself or your team today: www.CureBrainTumors.org #Race4HopeDC
Login and Update Personal and Team Page
Переглядів 795 місяців тому
Login and Update Personal and Team Page
Send Email from Participant Center
Переглядів 545 місяців тому
Send Email from Participant Center
Mobile App Walkthrough
Переглядів 385 місяців тому
Mobile App Walkthrough
The Caregiver Experience: Sandy and Mark Kramer
Переглядів 6746 місяців тому
The Caregiver Experience: Sandy and Mark Kramer
Championing Breakthroughs for the Brain Tumor Community: NBTS Board Chair Edjah Nduom, MD
Переглядів 4866 місяців тому
Championing Breakthroughs for the Brain Tumor Community: NBTS Board Chair Edjah Nduom, MD
Together, We Are Driving Breakthroughs Ahead
Переглядів 2457 місяців тому
Together, We Are Driving Breakthroughs Ahead
Understanding the Science: DNA Damage Response and Brain Cancer Treatment Breakthroughs
Переглядів 1,1 тис.7 місяців тому
Understanding the Science: DNA Damage Response and Brain Cancer Treatment Breakthroughs
Registration How To Video
Переглядів 1869 місяців тому
Registration How To Video
Update Team and Personal Goal
Переглядів 929 місяців тому
Update Team and Personal Goal
Facebook Fundraising How To Video
Переглядів 2149 місяців тому
Facebook Fundraising How To Video
The GBM Experience
Переглядів 7 тис.10 місяців тому
The GBM Experience
The Survivor GBM Experience
Переглядів 15 тис.10 місяців тому
The Survivor GBM Experience
New Jersey Brain Tumor Walk & Race-May 13 2023
Переглядів 105Рік тому
New Jersey Brain Tumor Walk & Race-May 13 2023
Breakthroughs Ahead: Holly Gibbons's Story
Переглядів 895Рік тому
Breakthroughs Ahead: Holly Gibbons's Story
Informed in 30 - Understanding Clinical Trials
Переглядів 661Рік тому
Informed in 30 - Understanding Clinical Trials

КОМЕНТАРІ

  • @shirlysamarakoon6669
    @shirlysamarakoon6669 Місяць тому

    My wife all so suffering gbm over one year now

  • @ovimanisumon9619
    @ovimanisumon9619 2 місяці тому

    My 32 year old brother passed away last 4 months due to this life threatening High Great Glioblastma disease😭😭

  • @jangeiger7021
    @jangeiger7021 2 місяці тому

    Loved my time spent with our group in DC with NBTS. You two are certainly warriors for this cause. Thank you from the bottom of my heart in continuing to do so. :)

  • @graceotoole2467
    @graceotoole2467 2 місяці тому

    Medical treatment should be free ,!

  • @janemcconnell8897
    @janemcconnell8897 2 місяці тому

    WOW. Love you guys and all that you do to support the cause. You are warriors!

  • @HearttoHomeCraftswithJoanne
    @HearttoHomeCraftswithJoanne 2 місяці тому

    Love you two, and will never forget Mark and his fight. -joanne

  • @cblassioli
    @cblassioli 3 місяці тому

    great lecture, this is very important

  • @elhamjafari6158
    @elhamjafari6158 3 місяці тому

    I lost my brother 8 days ago because of glioblastoma, I can feel them all. He was 37😞

  • @Karenanneseven
    @Karenanneseven 3 місяці тому

    Thank god for free healthcare in Australia 🇦🇺 ❤

  • @user-sl9uz8ut6z
    @user-sl9uz8ut6z 3 місяці тому

    IF I WERE YOU I WOULDN'T DO IT, CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS. JESUS LOVES YOU ❤

  • @debrabedrosian7008
    @debrabedrosian7008 4 місяці тому

    I am also 26 months in and wear optune 24/7 I thank God and my wonderful soctor!!

  • @catangnat1
    @catangnat1 4 місяці тому

    Fiancé was diagnosed on 3/24/24. Surgery was 4/6/23. Had recurrence 12/19/23. Second craniotomy 1/24/24. This disease takes your security , your patience, your future, and your soul. He’s still alive and fighting. But how much longer can we fight?

  • @dougwahchan
    @dougwahchan 4 місяці тому

    this video did not age well

  • @cinnamoslut
    @cinnamoslut 4 місяці тому

    What a cruel disease. I feel for the loved ones and the patients who suffer. The doctor in the video seems really excellent, I love her passion and compassion for patients and their loved ones. I hope treatment for this disease improves soon.

  • @deborahwalker422
    @deborahwalker422 5 місяців тому

    My husband passed from a GBM. He survived for 10 months, it was a 4.

  • @colinnz
    @colinnz 5 місяців тому

    Hi beautiful lady. Hope your still doing well. Sending love from New Zealand 🇳🇿 ❤️

  • @soubhikmama5204
    @soubhikmama5204 5 місяців тому

    My mother is a GBM grade -4 patient...she has identified in june,2023...she had done with the surgery and also completed her radiation...now she is continuing Temozolomide as her chemo medication.... please if there are some other treatments except these please please please help me

    • @railwa
      @railwa 5 місяців тому

      How's your mother health...my mother also suffering from gbm... from 2023..plz reply

    • @JBVIDEOSCHANNEL
      @JBVIDEOSCHANNEL 5 місяців тому

      Same here

    • @takagi4118
      @takagi4118 5 місяців тому

      same here😢my husband got an operation last year April 13 2023 and diagnosed GBM.Treatment was radiation ang chemo…For the last 9months his tumor cameback this year Feb 10 2024😢doc said my husband need to admit 3days to the hospital for another drug…Im fear to death everyday im not ready and i dont want to lose him i love him and my children is 7 10 14yrs old..Hope god give mercy on us and give more years to live to those have diagnosed GBM and other cancer patients.🙏🙏

    • @elhamjafari6158
      @elhamjafari6158 3 місяці тому

      There's a device named Optune, you may ask her doctor...

  • @graceotoole2467
    @graceotoole2467 5 місяців тому

    Praying for a cure

  • @user-lx1ro7ov8z
    @user-lx1ro7ov8z 5 місяців тому

    Doctor, please, how do I participate in a trial version? I have breast cancer from Algeria. May God protect you. Help me. Our country is medically incapable. I am 42 years old. I beg you to help me.

  • @shalinigupta290
    @shalinigupta290 5 місяців тому

    Can i know all persons grade who survived more than 2 yr ...and continue

  • @newz-tube
    @newz-tube 6 місяців тому

    Thank you. My wife passed in 2012 from a brain tumor. Yes there is a cure coming. Hope is the way!

  • @frankmarshall5801
    @frankmarshall5801 6 місяців тому

    Fantastic job guys

  • @bignorthernbear
    @bignorthernbear 7 місяців тому

    Gives me hope thx

  • @barbararogers197
    @barbararogers197 7 місяців тому

    My husband was diagnosed with GBM 2 months ago and is now undergoing radiation and chemo. Out of nowhere, our lives have changed forever, and we would love to be part of your clinical trials. We don't have much time but want to get on Prozac as soon as possible. We see a ray of hope where before, we had none. Please help us and thank you.

    • @NationalBrainTumorSociety
      @NationalBrainTumorSociety 7 місяців тому

      Hello, thank you for reaching out. We are sorry to hear about your husband's diagnosis and are here to support you and your family. You can access our clinical trials finder on our website here: trials.braintumor.org/ Additionally, we would like to share with you our support services page from our website, which has a list of valuable resources and support services that you may find helpful: braintumor.org/support-services/toolkit/patient-and-care-partner-resources/ If we can help you more, please do not hesitate to reach out, and we will be happy to help you further.

  • @lauravicari4608
    @lauravicari4608 8 місяців тому

    Nov 1, 2023 will be 6 years since my tumor made its presence known. I am grateful for amazing doctors and treatments, as well as the book, "Keto for Cancer" and herbal and nutritional support. The most helpful thing, though, was the advice to enjoy my life!

    • @Ocean1688
      @Ocean1688 5 місяців тому

      Age? I love survivor stories but am trying to learn more about glioblastoma in the elderly. (Age 74)

    • @chrissyesfand8101
      @chrissyesfand8101 3 місяці тому

      What did you take thank you

  • @barbararogers197
    @barbararogers197 8 місяців тому

    Thank you for all that you have done to help. My husband was diagnosed 2 months ago and went through surgery 1 month ago and is ow going though radiation, and chemo, and I am so lost and afraid. He has been my life for almost 40 years and I don't know how I am going to deal with this horrible trajedy.

    • @NationalBrainTumorSociety
      @NationalBrainTumorSociety 8 місяців тому

      Thank you for reaching out, we are sorry to hear about your husband and are here to support you and your family. If you have not had a chance yet, please visit our website for a list of resources and support services that you may find helpful: braintumor.org/support-services/toolkit/patient-and-care-partner-resources/ Additionally, we also offer a Patient Navigator team, which can be reached via email at patientnavigator@braintumor.org. You can also learn more about our Patient Navigator team on our website here: braintumor.org/support-services/personalized-support/ If you have any questions about the resources that we shared above or if we can be of additional assistance, please do not hesitate to reach out and we will be more than happy to help and connect you with our team.

    • @Sharpbevel
      @Sharpbevel 5 місяців тому

      Sorry you’re going through all this. My thoughts are with you & your husband.

  • @VivekKumar-ru6wr
    @VivekKumar-ru6wr 8 місяців тому

    Hey, how can i access the pediatric brain tumor dataset as a student?

    • @NationalBrainTumorSociety
      @NationalBrainTumorSociety 8 місяців тому

      Hello, thank you for reaching out, there are a number of databases that store research information on pediatric brain tumors. For example, there is the National Cancer Institute-funded Childhood Cancer Data Initiative (CCDI). CCDI has a data hub, and there is information on how to contact them and ask questions on their website: ccdi.cancer.gov/home

  • @begotten59
    @begotten59 8 місяців тому

    Shoutout to GBM 🥇🥇🥇 I’m a GBM survivor for 17 years and counting. 2014 teaching BID Deaf as a couch Coffee Barista students ☕️☕️☕️🙏🙏🙏❤️❤️❤️

  • @vickyshuttleworth4322
    @vickyshuttleworth4322 9 місяців тому

    Now a MBA graduate, and 18-year survivor and happy young woman!

  • @randallwilliams2274
    @randallwilliams2274 10 місяців тому

    I am a Giloblastoma surviver and I am in my 18 th month and I am doing really good. I did six weeks of radiation and chemo treatments and then I started optune cap and then we did 25 treatments more of radiation and I am doing chemo every 3 weeks and I am doing really good. I am not taking any medication at all for seizures or swelling and my last M R I was the best one we have had. I thank the Lord every day for another day and I know that the Lord is with me all the time. It is not about me but it's about what the Lord is doing for me. I haven't had one head ake or gotten sick because of chemo. Not one time have I been sick. Thank you Lord.

    • @jasonadefuye2620
      @jasonadefuye2620 9 місяців тому

      Glad to hear your doing great 👍👍👍

    • @nikitamariam9421
      @nikitamariam9421 8 місяців тому

      @randallwilliams2274 Glad to hear. Keep up the faith your gona beat this. All praise to God ❤

    • @deannsmith8903
      @deannsmith8903 5 місяців тому

      Beautiful testimony

    • @Ocean1688
      @Ocean1688 5 місяців тому

      What is your age? My MIL is 74 and was diagnosed 2 months ago

    • @deekshachauhan8338
      @deekshachauhan8338 4 місяці тому

      ​@@ingevonschneider5100just because someone doesn't survive doesn't mean she won't survive she will beat this and I hope people like u get their lesson ...who r so negative and insensitive to others ....also I have seen people survive shame on u man

  • @roberthortin5357
    @roberthortin5357 11 місяців тому

    I like to think that in 15 - 20 years time, no one will die from GBM. 🦘

  • @yvesgedin5664
    @yvesgedin5664 Рік тому

    This video is very informative. Dr Nduom did my wife surgery in August 2022. Thanks to him, she's doing well and free of the left side meningioma. He's an excellent surgeon and I would highly recommend him

  • @johnpauldagondong2720
    @johnpauldagondong2720 Рік тому

    should u also deliver radiation therapy to acoustic neuromas?

    • @marciwhitman3513
      @marciwhitman3513 10 місяців тому

      I have an acoustic neuroma. It's about 1.7 cm. I recently had stereotactic radiosurgery which is a type of radiation for acoustic neuroma. I had that in May of this year. It was only one session and it only lasted about 6 minutes. I get an MRI done in August and then I see the doctor for a follow-up the next week. So I can't tell you whether or not it's been successful or not because there has been no measurement as yet and I'm still dealing with the side effects.

  • @guylipof8742
    @guylipof8742 Рік тому

    Absolutely fabulous human being. Thank you for sharing her story.

  • @richardturner643
    @richardturner643 Рік тому

    Dr. Nduom and his staff saved my little brothers life. Amazing talent and bedside manner.

  • @azebghbrehawariate4695
    @azebghbrehawariate4695 Рік тому

    Why my stomack hart after the redation?

  • @azebghbrehawariate4695
    @azebghbrehawariate4695 Рік тому

    I did redation brain not stomach

  • @azebghbrehawariate4695
    @azebghbrehawariate4695 Рік тому

    Plese teal the truth pleseeer

    • @angiep10
      @angiep10 4 місяці тому

      How are you doing now?

  • @azebghbrehawariate4695
    @azebghbrehawariate4695 Рік тому

    I had stomach and my back pain how

  • @mattscott6591
    @mattscott6591 Рік тому

    I have dry itchy red scalp too

  • @bebeysmael1.
    @bebeysmael1. 2 роки тому

    I find that employers really don't understand what it means to have a brain tumor and they feel like they have a right to unemploy you because of that. Really, we need help in that area. Especially when it comes to affecting a person’s income and the need to pay bills like everyone else. That is my prayer every day since I acquired my brain tumor in 2017. It's been 5 years this November and things have gotten worse for me physically due to it. No one understands because of fear of the unknown and being uneducated on the subject #work #education #help #like #people #nationalbraintumorawareness #braininjury #braintumor #brainhealth

  • @bebeysmael1.
    @bebeysmael1. 2 роки тому

    NICE. I have an inoperable brain tumor and I find that MANY people are not educated on what it means to have a brain tumor and what it can do that affects your life and lifestyle at work and other places. Like one of my friends stated that she doesn't understand how I can forget things repeatedly and when I tried to explain to her that I have an inoperable brain tumor that does that to me, she said no, that was no excuse. So, to me, it's a matter of education and educating the people on what it means to have a brain tumor and how it affects a person's life and the things that can happen to them because of that. Hopefully you can help like that. I find that employers

  • @bebeysmael1.
    @bebeysmael1. 2 роки тому

    Nice. I completely forgot that May was National Brain Tumor Awareness Month, so the color Gray is a symbol for the fight to bring Brain Tumor Awareness to the world. I carry a Gray ribbon on the back my vehicle with a sticker from Kortney Rose Foundation that says THINK HAPPY THOUGHTS and my car is Gray and I have a sticker in the front window that is a Gray Ribbon Sticker with the words MAY IS BRAIN TUMOR AWARENESS MONTH and I just barely remembered and had to check the ribbon to be sure. So for me I must note it in my word document for birthdays and anniversaries, so I don't forget.

  • @bebeysmael1.
    @bebeysmael1. 2 роки тому

    GIRL. WOW. that's all I have to say. You're strictly SUPER HERO and a WALKING MIRACLE. Thank God for you and Thank you for giving us the message from God and teaching us about this predicament. YOU ARE IN MY PRAYERS FOREVER. I too have a brain tumor but mine is inoperable, meaning no surgery, no radiation therapy, nothing. So, I completely understand everything you're going through except Chemotherapy and Surgery which I haven't had to go through yet. I will light a candle for you tonight before I sleep. STAY STRONG SUPER HERO. PEACE, LOVE, AND HAVE FUN b:-)

  • @bebeysmael1.
    @bebeysmael1. 2 роки тому

    NICE. I completely forgot that May was National Brain Tumor Awareness Month, so the color Gray is a symbol for the fight to bring Brain Tumor Awareness to the world. I carry a Gray ribbon on the back my vehicle with a sticker from Kortney Rose Foundation that says THINK HAPPY THOUGHTS and my car is Gray and I have a sticker in the front window that is a Gray Ribbon Sticker with the words MAY IS BRAIN TUMOR AWARENESS MONTH and I just barely remembered and had to check the ribbon to be sure. So for me I must note it in my word document for birthdays and anniversaries, so I don't forget. NICE. I have an inoperable brain tumor and I find that MANY people are not educated on what it means to have a brain tumor and what it can do that affects your life and lifestyle at work and other places. Like one of my friends stated that she doesn't understand how I can forget things repeatedly and when I tried to explain to her that I have an inoperable brain tumor that does that to me, she said no, that was no excuse. So, to me, it's a matter of education and educating the people on what it means to have a brain tumor and how it affects a person's life and the things that can happen to them because of that. Hopefully you can help like that. I find that employers really don't understand what it means to have a brain tumor and they feel like they have a right to unemploy you because of that. Really, we need help in that area. Especially when it comes to affecting a person’s income and the need to pay bills like everyone else. That is my prayer every day since I acquired my brain tumor in 2017. It's been 5 years this November and things have gotten worse for me physically due to it. No one understands because of fear of the unknown and being uneducated on the subject

  • @kendallunforgettable6208
    @kendallunforgettable6208 2 роки тому

    TEAM INCREDIBLES

  • @msmroberts5909
    @msmroberts5909 2 роки тому

    New York always make some noise

  • @msmroberts5909
    @msmroberts5909 2 роки тому

    Congratulations Karen Turner and Team Incredibles❤️🥰🙏🏽👌🏽

  • @tomill1085
    @tomill1085 2 роки тому

    YT is hiding weather modification information. Like cloud seeding.